Thursday, May 19, 2011

Happy Mother's Day

Ok I know it's been a little while since I posted last but I did want to include this picture for my memory book I plan on making of this little blog at the end of the year!

My First Mother's Day = Complete (well almost) Fail

So I assumed (first mistake) that since this was my first Mother's Day my husband would do something special for me and maybe even remember to include Titan's name on the card! I love my husband I really really do but sometimes this man just doesn't get it! ha ha I went with him to the store the day before Mother's Day to pick up our food for the cookout we had at his sister's house and he asked me what I wanted for Mother's Day!!!! Ok personally I'm a huge fan of memories (obviously or I probably wouldn't love my profession!) so I made a big deal of the fact that he hadn't done anything special for me already so there's no point now since I'm already with him in the store about 15 minutes before they close! How am I supposed to write about my first mother's day if seriously there was no effort the entire day to make me feel special?!?!?!!? Maybe he'll get it one day? I even pulled out my awesome little book I've been keeping up with for Titan's first year and he read aloud "What did Daddy and I do to make Mommy's First Mother's Day special?" I think he got the point soon after that.

Now, before you jump down my case about being superficial or unappreciative I want you to realize that if I had let this slide without making a big deal about it, he wouldn't have got the point and thought that from here on out he would get away with not planning anything! I don't really care if I get a present or not, that's not what it's all about, but I do care that I felt special in some way or at least there was an effort put forth to make me feel that way (not a last minute pity gift!) I hope you see my point.

I did however make sure to get a picture of our first Mother's Day right after church so I could document how much Titan loves his Mommy! :)






Friday, May 6, 2011

Dentist

There was actually a time that I loved going to the dentist and was truly excited about it.....I was young, naive, and probably 10! After I had my first crown things drastically changed. Now I get anxious and often wiggle, shake, cry (just a little), and clasp my hands tight in nervousness. The last few days I've noticed some pain in my mouth along with some large holes in my teeth...not good. I'll be the first to admit I eat a LOT of candy and have no problem admitting a LOT of soda as well. Well apparently that along with the fact that I don't floss regularly (usually only when I eat popcorn or when I randomly think to do it), equals tooth decay and lots of it. So here's my two cents...... go to the dentist to have your teeth cleaned regularly, make sure you brush, floss, and use mouthwash (ACT brand is my favorite), it will be much cheaper that way! I believe I will end up having two root canals along with some crowns......one root canal costs nearly $1000!!!!

This is a gross picture but I want you to see what I was up against!


I had already planned a dentist appointment probably two weeks prior to this point, but this is what my mouth looked like when I woke up yesterday morning! I was totally mortified! I've never had anything like this happen to me before! DISGUSTING! That is in fact an infected gumline. Thankfully I found a great dentist (Rod Roark in Fayetteville) and he quickly took care of it by draining it and prescribing me an antibiotic. Today it looks just like normal.....thank goodness!!!!



Thursday, May 5, 2011

A Worried Mom and a Healthy Baby

Every once in a while I get random emails from mothers who have found my blog post about mastocytosis. While I am always excited to meet more mom's who are dealing with this same thing I am not excited that there's so many of us left to battle all these thoughts rumbling around in our heads!

Most days I go about my daily business and the thought that my child has a disease is in the back of my mind. Then there are the days that I get sucked in to the internet and read WAY too much! I get on pages like The Mastocytosis Society on FB and totally get freaked out and start thinking about all the what if's and then usually end up with several snotty tissues by the end of the night. Tonight was one of those nights.

I'm not going to lie but sometimes I get a little overwhelmed that our child has this awful disease and I just start feeling awful thoughts about it developing into Systemic Masto (which involves your internal organs) and having much worse effects such as nausea and vomiting, to name a few. Then to top it off I read, tonight, that people have developed leukemia from this disease! Talk about instant sob mode! Geeesh.

But I'm here to report good news tonight and take that step forward in the right direction. A few weeks ago we visited Children's again (here's the first blog post about our Children's trip) and Titan had some blood drawn to send off for lab work. I asked if they would let me know what his Tryptase levels were. If you didn't know, you and me have levels below 20, the first time they were taken his were 105!!!!! When I asked them to inform me I was quickly reminded by the doctor that he didn't expect them to drop much but they would still let me know. As you can imagine I was smiling from ear to ear and wanted to shout out the news at the wedding I was shooting for my cousin in Utah last weekend when I got a phone call that his Tryptase levels were down to 48!!! I was like a little kid that just got a new puppy! Such joy I found in hearing these silly numbers. I'll be honest I'm not real sure what this actually means, but in my heart they mean he's doing much better! All I know about Tryptase is that by the high level they were able to rule out allergies as the culprit of all those hives and blisters, which lead us to the next step which was a skin biopsy that revealed this disease.


Tuesday was Titan's first time to experience grass. I know this seems silly and not super important but I've been dying to put him in it. I heard one of our doctors mention that a patient was complaining about their child breaking out in blisters when he played in the grass (this lead to finding out the child had masto and this was one of his triggers). We were in town so I decided that was as good of a place as any if he did end up having a reaction from the grass at least we were close to a hospital! Grass experience went really well though! As you can see he really likes it! He kept pulling it and trying to eat it!!! ha ha




On a side note.....we ran out of medicine for him Monday morning and I was unable to pick it up (due to insurance reasons) on Monday evening, meaning he skipped a dose. Then he missed a dose in the morning before we could get up to the pharmacy. This is an example of what his skin does in a short period of time!!! Thankfully this isn't that bad and it soon got better in the afternoon when we could get his meds.

Right now he takes:

Morning- 1/2 tsp. Zantac
- 1/2 tsp. Zyrtec
- rub triamcinolone cream all over him after his bath

Evening - 1/2 tsp. Zantac
- 1/2 tsp. Zyrtec
- 1/2 tsp. Hydroxyzine
- rub triamcinolone cream all over him after his bath

(Epinephrine as needed in emergency)

*He was on Singular as well (which we would give to him in powder form in his bottle in the morning) but he has since been taken off this medicine. Honestly I didn't really see a change.


If you have Masto or a child with Masto I would love to hear from you or even if you just want to be a cheerleader for Titan we'd like to hear from you too!





Tuesday, May 3, 2011

Happy Mini Birthday!

Around here (probably until he's one) the third of every month is kind of a big deal! It means mommy gets out the camera and documents all day! It means the Razorback rocker gets used. It means our little guy is a solid month older! Today he's 8 months old! Wow time flies!

Titan at 8 months:
-on the verge of crawling (army crawls when he wants to)
-mommy saw him pull himself up twice
-he likes to make spatting noises with his mouth
-he fake coughs and it's adorable
-he loves to play with anything that isn't a toy (LOVES paper!!!)
-his tryptase levels decreased almost by about 50%
-his white blonde hair is starting to grow in more
-he hasn't tried a food he doesn't like


I love my little family!



Monday, May 2, 2011

Alumni Game


My husband recently participated in an Alumni game at their high school. What a great idea and an awesome fundraiser! Everyone who graduated in an odd year was on the same team as well as everyone from an even year. Turns out my husband his brothers and his cousin were all on the same team! Unfortunately I was out of town shooting a wedding but I heard all about it and my husband said it was a whole lot of fun! I'm so glad they did such a great event like that! I know if that was me I would love to return and play some alumni games at my high school! This photo is priceless! I know they will cherish it for a lifetime! There's no other time that they would have all gotten to be in uniform together!





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